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Which is your favorite resource for teaching a young child about hemophilia?

NHF's First Steps

Kids Guide to Hemophilia

Hemophilia in Pictures (at wfh.org)

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4/17/2007

Keeping Your Child Safe Away from Home

When faced with decisions about what to tell others, these ideas can help

Do you find yourself worrying when he’s not around? Ease your mind by following some time-proven guidance for communicating with others about his needs. Everyone who interacts with your child regularly – from friends, to other parents, even a babysitter – needs to know the basics about hemophilia. Reassure them that you are just a phone call away and, in the event of injury, there is time to get help.

Here are some basic concepts to share with everyone spending time with your child:

Describe hemophilia simply and accurately
Explain basic signs and symptoms of bleeding
Review basic first aid: Rest, Ice, Compression and Elevation (RICE)¹
Specify approved sports and play activities and provide protective gear when needed.²
Share your contact information and keep it up-to-date

Consider providing your child’s friends the same basic understanding about hemophilia that you’ve given to your other children. These resources can help:

Kids Guide to Hemophilia – a quick online guide explaining what hemophilia is in very simple terms, and what it means to live with the condition
Hemophilia Basics – includes more details and information than the Kids Guide.

Download and use these Talking Points when informing the babysitter, parent, school staff and others. They’ll help ensure you cover all necessary topics of concern.

¹ How can bleeds be treated with first aid? http://www.whf.org. February, 2007.
² Living With Hemophilia. http://www.nhlbi.nih.gov/health/dci/Diseases/hemophilia. February, 2007.

What You Have To Say:

We welcome your stories and tips about living with hemophilia. By sharing, you could help others who face similar challenges. We also look forward to your comments - positive and otherwise - on our articles and Web site. Due to regulatory compliance however, please refrain from talking specifically about any factor products.

10/10/2007 12:25:12 PM
Bayer HealthCare
Have you told your child's friends about hemophilia? Do you feel it helped? Do you worry when your child leaves home for school or to play?

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The content on this site does not necessarily represent the views of Bayer HealthCare LLC. Please consult your health care provider prior to making any lifestyle changes. The images used on this site do not necessarily represent actual Hemophilia patients.

Kogenate® FS, Antihemophilic Factor (Recombinant), is a recombinant factor VIII treatment indicated for the treatment of hemophilia A. The most frequently reported adverse events were local injection site reactions, dizziness, and rash. Known intolerance or allergic reactions to constituents of the preparation is a contraindication to the use of Kogenate® FS. Known hypersensitivity to mouse or hamster protein may be a contraindication to the use of Kogenate® FS. For important safety and use information, please see the full prescribing information.

Find information on Kogenate® FS in your country:

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